Vision Therapy for Autism, ADHD and Other Neurodevelopmental Disorders

Vision Therapy for Autism, ADHD and Other Neurodevelopmental DisordersI am fortunate to have Dr. Randy Schulman, MS, OD, FCOVD, as my sons’ behavioral optometrist.  Dr. Schulman wrote the chapters on the role of vision therapy and optometry in Patty Lemer’s book, “Envisioning a Bright Future:  Interventions that Work for Children and Adults with Autism Spectrum Disorders“, which I reviewed earlier.  Patty was the one who recommended Dr. Schulman to me, and she practices in my area.

Patty has always talked about the importance of vision therapy for people with autism, ADHD, sensory processing disorder (SPD), learning disabilities and other neurological disorders.  Now I know why.  In fact, Patty’s book was published by the Optometric Extension Program Foundation, which should give you a clue as to the importance of vision in neurodevelopmental disorders.

Vision Problems a Cause of Many ASD Symptoms

I was astounded to learn that vision problems are a CAUSE of, not a by-product of, many ASD symptoms.  “Poor eye contact, repetitive stimulatory behaviors and practically every other behavioral symptom (such as staring at lights or spinning objects, side viewing and head tilting) could be caused by poor fixation, accommodation, or eye teaming abilities.”

Vision Therapy Can Bring Gains in Social and/or Language Ability

Dr. Schulman writes that, “visual problems affect cognitive, speech-language, social-emotional and perpetual development”, and she relates many cases in these chapters of children who showed great gains in social or language ability after beginning vision therapy.  One child made eye contact for the first time, another spoke (in full sentences) for the first time.

However, only about a third of patients see immediate gains on the first visit, but many more see big gains after weekly vision therapy sessions.  Dr. Schulman points out that, “Most children do not outgrow delays in visual development without intervention”.

Understanding the Development of the Sensory System

To understand why children can see gains in these seemingly unrelated areas, you need to understand how the sensory system develops and how it is affected by primitive reflexes.  Dr. Schulman does an excellent job of laying this out, while revealing, to me at least, some surprising findings.

I had known that gross-motor delays are common in children with neurodevelopmental disorders, especially if they skip or move too quickly through a developmental phase.  I experienced this with my own two sons:  my older son didn’t walk until he was 20 months old, my younger son when he was 16 months.  My older son never cross-crawled, which is imperative for wiring the brain for correct vision as it is the same ratio as an older child looking at his desk.  Remember that vision is not seeing.  Vision is what happens inside the brain once the eyes have seen.

I’ve recovered them from sensory processing disorder, but there are still residual issues that remain.  In fact, my older son just got bifocals from Dr. Schulman; the top part is for distance because he’s nearsighted and the bottom part is blank.  I’m betting that 99% of most optometrists would’ve given him regular glasses to correct for his nearsightedness and left it at that.  Having bifocals gives his eyes a chance to develop further without completely relying on corrective lenses.

Vision at the Top of the Hierarchy of Senses

In any case, there is a hierarchy of senses, and vision is at the top, meaning that other senses must develop first before proper vision occurs.  As babies get older, a neurotypical child inhibits primitive reflexes that are necessary to integrate the senses and provide the ability to sit up straight, cross crawl, walk, etc.  Dr. Schulman writes, “Vision develops according to a hierarchy, and vision development will be delayed by immature oral and motor development”.

Retention of these reflexes is common in children with neurodevelopmental disorders, which is why they may appear, to the unknowing person, to be more clumsy and/or to have poor gross- and fine-motor skills, which can ultimately lead to poor social skills.

She writes that, “Postural warps can mirror visual dysfunctions and asymmetries – either caused by or causing them.”  The timing of reading this could not be more coincidental to me, as I just posted a blog written by an OT, Sonia Story, for Epidemic Answers called, “Children Thrive with Neurodevelopmental Movement“.  In the blog, Ms. Story shows us that it’s fairly easy to spot a child, even a baby, with a developmental delay:  they’re typically the ones with poor posture.

Dr. Schulman also points out that, “Children who have poor oral motor skills such as sucking, blowing or swallowing abiltity often have convergence problems that can improve once the oral concerns have been addressed”.  This is due to a poor rooting reflex, which causes a baby to turn its head and open its mouth in preparation for nursing.  And what does a baby do when she’s nursing?  She looks at her mom!  This is how babies learn to focus their eyes.

Children with vision problems typically also have hypersensitive hearing, and now I know why.  Dr. Schulman writes that, “Many patients rely heavily on their auditory systems because the visual systems are so inefficient and unreliable”.  Huh.  So, correcting vision would reduce the stress load on the hearing system.  Interesting!

These children typically also have acute senses of taste and smell, which makes them picky eaters.  They “often prefer less typically used senses of taste and smell to gain information.  They smell or taste inedible objects, and use touch instead of vision to gain information”.  I wonder if the same logic holds true:  that if vision were corrected, these children might become less picky in their eating?

Factors Affecting Vision Development

Even though I’ve read a lot about developmental delays, primitive reflexes and neurodevelopmental disorders, Dr. Schulman pointed out some things that were interesting to me, and of which I’d never heard or read, especially as it relates to vision.  The most outstanding point is that, “Inadequate or inappropriate sensory stimulation and health problems, ranging from food allergies to ear infections and asthma can all disrupt vision development”.

She also writes that, “Risk factors for visual problems include frequent illness, particularly ear and strep infections, and their treatment with antibiotics.”  I betcha very few pediatricians know about this risk, despite the fact that they hand out antibiotic prescriptions as if they were candy.  Ugh.

Strabismus

Many children on the spectrum have an eye turn, called a “strabismus”.  An opthamologist would typically recommend surgery, but Dr. Schulman points out that, in many cases, this condition can be corrected with vision therapy.  Besides, fixing the eye with surgery is only a cosmetic patch and does nothing to fix the incorrect vision that causes the strabismus.  “It’s not …an ‘eyeball’ problem, but rather… a brain dysfunction”.

Vision Therapy

If your child has a neurodevelopmental disorder, I urge you to seek out care from a behavioral optometrist as one of your first choices for therapy, as the vision correction he or she provides can head off some of the other sensory issues that these children have and potentially lead to better social interaction.

Reading Patty’s book and Dr. Schulman’s chapters in it will give you a very clear understanding of how these practitioners use prisms, yoked prisms, visual arousal activities and more to improve vision.  You can also check out the website of the College of Optometrists in Vision Development to find a practitioner near you as well as to learn more.

 

Angelfish Therapy: Aquatic Therapy for Developmental Delays

Angelfish Therapy: Aquatic Therapy for Developmental DelaysWARNING:  I am a huge, biased fan of Cindy Freedman and Ailene Tisser of Angelfish Therapy aquatic therapy.

Angelfish Therapy is aquatic occupational therapy for children with developmental delays, gross motor delays and sensory issues, especially those concerning water.  This can include kids with sensory processing disorder, learning disabilities, ADHD, autism, PDD-NOS, speech delays, apraxia and dyspraxia.

I began taking my older son to aquatic therapy at Angelfish 4 years ago; Cindy Freedman worked with him for 1-1/2 years.

Retained Reflexes

It was there, sitting on the side of the pool during weekly therapy sessions, that I learned about about retained reflexes.  Retained reflexes are ones that a child has kept rather than integrating as a normal part of development.  They are typically seen in the types of children listed above.

Cindy told me that my son had a retained Moro reflex, which was the reason for his constant state of “fight or flight”, which for him, meant a lot of anxiety and being upset at the drop of a hat, which made swimming difficult for him.

Before my son had any kind of OT at all, I used to take him for Mommy & Me baby swimming classes at the local YMCA.  He would get so upset at being in the water that he wouldn’t be able to learn much at all.  One time he got so upset that he came home and wiped down half the cabinets in the kitchen for half an hour just to soothe himself.

Now that I had learned about his retained Moro reflex, his reactions began making more sense to me.

Is It ADHD or Is It a Retained Symmetrical Tonic Neck Reflex?

Cindy also told me that he had a retained Symmetrical Tonic Neck Reflex (STNR), which, if it’s not integrated, according to Rhythmic Movement Training International, can lead to:

  • Poor, hunched posture
  • Headaches from muscle tension in the neck
  • Difficulty writing and reading
  • Difficulty sitting still
  • “W” sitting
  • Difficulty copying from blackboard
  • Ape-like walking
  • Vision disorders
  • Find it difficult to stay on task

A lot (75%!) of kids with a retained STNR have ADHD, writes Sally Goddard, author of “Reflexes, Learning & Behavior:  A Window into the Child’s Mind: A Non-Invasive Approach to Solving Learning & Behavior Problems.”

And a lot of times, a retained STNR can look like ADHD simply because of the retained reflex.  In addition, many times Sensory Processing Disorder can look like ADHD.  So don’t put your kids on Ritalin just yet!

The STNR separates the body’s movements from the top half to the bottom half.  It’s used to help a baby push off the floor learning to cross crawl.  If it’s integrated, a baby will uncouple the head’s movement from the movement of the arms and legs.

Sounds like just a minor point, but it’s not.  Many kids, like my son, with a retained STNR never cross-crawled or did so for just a short period of time.  My son slithered backwards for a couple of months when he first started to move, then he army crawled from 8 to 18 months.  He cross-crawled for about a month and only began to walk at 20 months, which is REALLY late.

Cross-crawling helps wire the brain’s visual processing, which in turn affects learning ability.  Think about it:  A cross-crawling baby who can bend his neck to look down at the floor then up at his mom mimics the same motion that a child in school does who bends his neck to look at his schoolwork then up to the blackboard.

Teachers:  How many “ADHD” kids that you see in your classroom have poor posture and lack the ability to sit up straight and focus?  Could it be they have a retained STNR?

Because my son had a retained STNR, swimming was difficult for him because kids (and it seems to be mostly boys) with it can’t uncouple their head movements from the rest of their bodies, so they swim with their heads back and can’t put them down into the water without the back half of their bodies falling down.

So not only does aquatic therapy help with overcoming developmental delays, but it also helps with learning, and, most importantly, helps with water safety for these children.  Do you know that drowning is the leading cause of death for autistic children?

If you’re not fortunate enough to live in Fairfield County, CT, the New York City area, the Boston area, or Asheville, NC, you can purchase their videos for your own education.  If you’re a PT, OT, etc., you can attend their workshops and get certified as an Angelfish instructor.

In closing, you can see Ailene working with a boy to help correct his balance in this YouTube video:

P.S.  My son actually swims now!

 

IS IT FATIGUE OR MITOCHONDRIAL DYSFUNCTION?

mitochondrionBecause of my son’s failure to thrive, our pediatrician sent us to see Vicki Kobliner, a holistic nutritionist, who’s also on the board of Epidemic Answers with me.

Given that Crane Man has constant fatigue and stomach pain, poor growth, mild sensory issues and developmental delays, Vicki suggested having preliminary tests for mitochondrial dysfunction done.  [Read more…]

Lyme Disease Symptoms in Children

A few months ago, my then-6-year-old son had a definite change in his typically sweet personality for the worst.

Given that he already been recovered from sensory processing disorder, I was confused.

This time, instead of crying at loud sounds, bright lights, fast motions, etc., he was ANGRY.  In fact, every time I would ask him to do something, he would yell back at me and say that I hated him and that I was yelling, when in fact I wasn’t yelling at all.

Almost every day he would look at me with total hatred and anger, stomp out the front door and tell me he was running away from home.

I was really confused because these are supposed to be the “golden” years of childhood when there’s not so much hands-on work to do with children this age and they are happy to be with their family.

I kept thinking “If he’s like this as a child, what the heck is he going to be like as a teenager?”

Could It Be Lyme?

This went on for a few months until I remembered about Lyme disease; this blog is about Lyme disease symptoms in children..  Lyme disease can cause sudden changes in behavior, and we live in tick-ridden Connecticut, so this wasn’t a far-out hypothesis.

Lymedisease.org lists the following common symptoms of children with Lyme:

  • “severe fatigue unrelieved by rest
  • insomnia
  • headaches
  • nausea, abdominal pain
  • impaired concentration
  • poor short-term memory
  • inability to sustain attention
  • difficulty thinking and expressing thoughts
  • difficulty reading and writing
  • being overwhelmed by schoolwork
  • difficulty making decisions
  • confusion
  • uncharacteristic behavior
  • outbursts and mood swings
  • fevers/chills
  • joint pain
  • dizziness
  • noise and light sensitivity”

Here a few other symptoms in children:

  • Low tone
  • Clumsiness
  • Learning disabilities
  • Vision problems
  • Fear of heights
  • Rages
  • OCD
  • Heartburn
  • Achiness, especially in the knees

Uncharacteristic Behavior

It was the uncharacteristic behavior, outbursts and mood swings that really made me suspect that it might be Lyme.

I did more research on it, especially about Dr. Charles Ray Jones, a Lyme pediatric specialist who practices near my town.  I had heard him speak before at Dietrich Klinghardt’s Klinghardt Academy in New York City a few months prior; Dr. Klinghardt also specializes in difficult-to-treat disorders, like Lyme, autism and autoimmune diseases.

I had brought a friend who suffers from possible Lyme disease with me to the Academy’s workshops, and she knew of Dr. Jones and his amazing work.

Dr. Jones is fairly famous in the Lyme disease community for recovering children from what is thought to be autism, ADHD, SPD, OCD, ODD and other neurodevelopmental disorders.  It turns out that in MANY of these cases, these children actually had Lyme disease. 

Dr. Jones has recovered over 10,000 children from these disorders.  He prescribes various antibiotics for a course of many years, whereas if you were to go to a typical doctor for treatment of Lyme, he or she would prescribe antibiotics for a few weeks or months.

Personally, I wouldn’t want to subject myself or my children to antibiotics for any amount of time these days, knowing what I know about how they destroy the immune system.  But, hey, the man gets results, and the results show that many of these disorders are, in fact, from Lyme infections.

In his presentation, he gave a few examples of children.  One of them was a young boy who at a very young age (5 or 6) had already been in and out of juvenile detention for things like harming animals, which is a known sign of a child or person on the road to becoming a hardened criminal.  After a few months of treatment from Dr. Jones, this same boy had become the sweetest, most likeable child.

Dr. Jones typically suspects Lyme if the child has any of the following conditions:

  • “frequent fevers
  • increased incidence of ear and throat infections
  • increased incidence of pneumonia
  • irritability
  • joint and body pain
  • poor muscle tone
  • gastroesophageal reflux
  • small windpipe (tracheomalacia)
  • cataracts and other eye problems
  • developmental delay
  • learning disabilities
  • psychiatric problems”

What’s interesting is that 50% of Dr. Jones’ patients have no known history of being bitten by a deer tick and fewer than 10% have a history the classic Lyme bull’s-eye rash (erythema migrans).  In fact, many times the mother unknowingly passes the infection on to the child during pregnancy or childbirth.

Lyme Co-Infections

Lyme disease isn’t just infection from the Lyme spirochete bacterium.  There are also co-infections (bartanella, babesia and erlichia) that typically occur at the same time.  Or someone could just get one of the co-infections without having any of the other co-infections of Lyme.

Lyme disease and its co-infections are difficult to test for.  One reason is due to the corkscrew shape of the bacteria, which allows them to burrow in without being easily detected.

Spirochetes (see the word “spiral” in there?) are one of the most ancient forms of life on this Earth, and they know to survive and adapt to rapidly changing environments.

The Great Masquerader

Lyme can masquerade not only as autism and development delays but also as rheumatoid arthritis (RA), fibromyalgia, multiple sclerosis and neurological damage.  In my mind, it should be one of the first things tested for when an autoimmune disease or neurological dysfunction has a sudden onset.  It’s becoming a hidden epidemic, as not a lot of doctors know to test for it.

There’s an excellent documentary about Lyme called, “Under Our Skin”.  I specifically remember a beautiful woman documented in the film who became increasingly contorted.  She gradually lost control of many of her muscles, and doctors, of course, thought she had multiple sclerosis (MS).

The reason that we know it wasn’t MS is that she regained her strength and control after a very long course of antibiotics, so it was obviously an infection.  How many people that have MS, RA, fibromyalgia, autism or developmental delays simply have Lyme?  It’s a real shame they’re not getting proper treatment.

Lyme is not just limited to the Northeastern U.S. anymore; it’s now spreading west to places where you wouldn’t think deer ticks are.  Deer ticks are not the only means of transmission:  mosquitoes, fleas and ticks can also carry the infection.

Given that there is an increasing number of people with gut dysbiosis and toxicity, and thus, a compromised immune system, it’s not surprising that their weakened state allows for such an infection.

Testing for Lyme

Most doctors will run a Western blot test, but it’s not always accurate.  An IgG test would show elevated levels when fighting an infection for a long time, and an IgM test shows if an illness has been reactivated.

Given the confusion surrounding the issue of detecting Lyme, I asked our naturopath to test my son for Lyme with his ASYRA (yes, it’s a little “woo woo”).  Sure enough, my son was infected with bartonella, also known as cat-scratch fever.

Rather than going the antibiotic route, our naturopath prescribed a super-strong herbal remedy.  Ever since treatment began a couple of months, my son hasn’t been hateful or hurtful and is now the super-sweet boy I remember.  His favorite words now are, “I’m so happy I could cry.”  Me, too!

 

C SECTIONS AND BABY FORMULA

infant formulaYet another study shows that C sections and feeding your baby formula instead of breastmilk can change your baby’s gut flora for the worse, leading to gut dysbiosis.

The study’s lead author, Meghan Azad, says that, “Infants born by cesarean delivery are at increased risk of asthma, obesity and type 1 diabetes, whereas breastfeeding is variably protective against these and other disorders.”

I would go further and explain to you that many neurological disorders (autism, PDD-NOS, ADHD, Sensory Processing Disorder, Lyme, depression, schizophrenia, bipolar disorder, multiple sclerosis, etc.), digestive disorders (acid reflux, colic, colitis, Crohn’s, celiac, etc.) and/or autoimmune diseases (rheumatoid arthritis, fibromyalgia, lupus, etc.) have gut dysbiosis as a core, underlying future.

 

CAN KIDS BE RECOVERED FROM AUTISM?


We at Epidemic Answers know that children can be recovered from autism, as well as PDD-NOS, Sensory Processing Disorder, ADHD, allergies, asthma, autoimmune diseases, neurological disorders and digestive issues.

In fact, we’re making a film about recovering 14 kids in 5 cities from 7 disorders:  autism, ADHD, asthma, atopic dermatitis, juvenile rheumatoid arthritis, mood disorders and type 2 diabetes/obesity.

Dr. Rusell Jaffe, developer of the ELISA/ACT test, and Dr. Martha Herbert, Harvard pediatric neurologist and author of “The Autism Revolution”, are heading up the film’s medical advisory board.

Something is happening to our children.

Over the last two decades:
* Asthma has increased 300%
* ADHD has increased 400%
* Allergies have increased 400%
* And autism has increased 1500%

We can help.

Many say it is not possible.

But we are doing the impossible.

14 children.  18 months.  1 goal.

Recovery.

Help us help them.  We need your help.  Even $5 can help us get this important film made.  Many people, even many doctors, don’t know that kids can recover from these conditions.

www.EpidemicAnswers.org/donate

RECOVERY FROM SENSORY PROCESSING DISORDER, REFLUX, ASTHMA, ECZEMA

older sonMy Children: Recovered from Sensory Processing Disorder, Acid Reflux, Asthma and Eczema, and getting healthier everyday!

(NOTE:  This is a blog I wrote for Epidemic Answers, a 501(c)3 non-profit of which I am a Board Member.  We let parents know that recovery is possible from autism, PDD-NOS, ADHD, allergies, asthma, autoimmune diseases and other chronic children’s health disorders.)

I have recovered my sons from sensory processing disorder (SPD), acid reflux,  asthma and eczema.  [Read more…]

INFLAMMATION AND AUTISM

fireNew research suggests that mom’s inflammation during pregnancy contributes to a higher risk of autism.

Inflammation was measured by the amount of C-reactive protein (CRP) in a pregnant woman’s blood.

Results were striking:

  • Pregnant women with CRP in the top 20th percentile have a 43% increased risk of having a child with autism.
  • Pregnant women whose CRP is in the top 10th percentile have a whopping 80% higher risk of having an autistic child.

If you have any kind of chronic allergies, asthma, chronic runny nose, autoimmune, rashes, pain, swelling, digestive issues, etc., you have chronic inflammation.

 

ENVIRONMENTAL TOXICITY AND AUTISM

Pollution of environmentHave you ever wondered WHY there’s such an epidemic of autism these days?  Why is the rate now 1 in 50, when it was only 1 in 10,000 a couple of decades ago?

Not only that, but WHY are there also epidemics of developmental delays, learning disabilities, ADHD, allergies, asthma, mood disorders, sensory processing disorder, OCD, Lyme disease, autoimmune diseases and ear infections?

One of the reasons, confirmed yet again, is that environmental toxicity plays a role.  Epidemiologist Irva Hertz-Picciotto’s research says that a mom’s proximity to car pollution raises her risk of having an autistic child.

Dr. Phillip Landrigan and his team at the Mount Sinai Children’s Environmental Health Center have been saying much the same thing about the detrimental effects of certain toxins such as lead, mercury and flame retardants on the neurodevelopment of children.

My friend and colleague from Epidemic Answers, Beth Lambert, has written an excellent book about the multi-factorial causes of these epidemics.  In her book, “A Compromised Generation“, she has written about the perfect storm of causes, including environmental toxicity, leading to these epidemics.

Have you looked into how toxicity might be related to your or your child’s chronic illnesses?

 

WEBINAR REPLAY: THERAPIES THAT WORK FOR AUTISM, PDD-NOS, SPD, ADHD, LD AND DEVELOPMENTAL DELAYS

Patty Lemer

Patty Lemer

Earlier today, I interviewed Patricia Lemer, Executive Director and Co-Founder of Developmental Delay Resources (DDR), a non-profit that is dedicated to meeting the needs of children with developmental delays in sensory, motor, language, social, and emotional areas.

Today’s interview was phenomenal and full of practical information because Patty has worked with these children for over 40 years, and she knows what therapies and interventions work.

Some of her recommended resources are:

Patty lists many more references in the webinar, so it’s a good idea to listen to it.