THE “R” WORD

road to recovery signYou may or may not know my personal recovery story. I have recovered my 2 sons, now ages 5 and 7, from sensory processing disorder (SPD), asthma, allergies, acid reflux and eczema with a biomedical approach, which means correcting nutritional and hormonal deficiencies, removing toxicities and correcting gut dysbiosis.

I’m still working on failure to thrive, mitochondrial dysfunction, hypothyroidism and persistent eczema in my older son. In addition, they both had developmental delays, and my older son had severe hypotonia as a baby.

I have recovered from immune dysregulation, in which I had shingles twice, the worst case of poison-ivy ever, bronchitis (which I’d never had before), constant sinus infections and constant colds that would last 3-4 weeks at a time.

My older son had immune dysregulation, too, when he was younger: he would go to preschool, get sick and be out for at least a week at a time, then go to school the next week, get sick, and the cycle repeated ad nauseum (pun intended).

I also had severe adrenal fatigue, which was caused by dealing with my older son’s severe SPD.

Adrenal fatigue caused middle-of-the-night insomnia, in which I would be awake for hours at a time in the middle of the night and be so dead tired the next day that 3 hour naps wouldn’t help.

I later learned that adrenal fatigue was the cause of the onslaught of my “female problems”, which I’d never had before: a suddenly irregular menstrual cycle, a uterine fibroid and ovarian cysts.

I also found out I have two types of anemia: iron-deficiency (the more commonly known about kind) and folate-deficiency. I learned how these and most of out other problems can be tied back to gut dysbiosis and its chronic infections, especially Candidiasis.

I also discovered that I am hypothyroid and that this may have played a large part in my sons’ problems when I was pregnant with them.

I found out that I was loaded with heavy metals, especially mercury and lead, which are the most neurologically damaging. I immediately had my sons tested and found out they were full of them, too.

It’s been very hard going through this, as most people, even most doctors, don’t know about the causes of all these problems. They don’t understand that all of these problems are related, and they certainly don’t know that recovery is possible.

We got a lot of help from changing our diets and seeing a naturopath, a functional-medicine doctor and a holistic nutritionist, as well as from me doing never-ending research about how all of these problems are connected.

We’ve recovered from so much, although there is still more work to be done. In any case, we are so much better off now than we were 4 years ago, when all of these problems hit a crescendo.

I want people to know that recovery is possible, which is why I joined the non-profit Epidemic Answers. We seek to educate parents about the causes of these problems as well as let them know that recovery is possible.

In fact, we’re making a documentary film to show the world that recovery is possible because most people just don’t know that.

Most people don’t know that a child can recover from autism or asthma or that an adult can recover from an autoimmune disease, even multiple sclerosis or rheumatoid arthritis.

If you want to learn more about our film, you can find out more by watching this video or by visiting our website. Please help us get this film made!

 

Lyme Disease Symptoms in Children

A few months ago, my then-6-year-old son had a definite change in his typically sweet personality for the worst.

Given that he already been recovered from sensory processing disorder, I was confused.

This time, instead of crying at loud sounds, bright lights, fast motions, etc., he was ANGRY.  In fact, every time I would ask him to do something, he would yell back at me and say that I hated him and that I was yelling, when in fact I wasn’t yelling at all.

Almost every day he would look at me with total hatred and anger, stomp out the front door and tell me he was running away from home.

I was really confused because these are supposed to be the “golden” years of childhood when there’s not so much hands-on work to do with children this age and they are happy to be with their family.

I kept thinking “If he’s like this as a child, what the heck is he going to be like as a teenager?”

Could It Be Lyme?

This went on for a few months until I remembered about Lyme disease; this blog is about Lyme disease symptoms in children..  Lyme disease can cause sudden changes in behavior, and we live in tick-ridden Connecticut, so this wasn’t a far-out hypothesis.

Lymedisease.org lists the following common symptoms of children with Lyme:

  • “severe fatigue unrelieved by rest
  • insomnia
  • headaches
  • nausea, abdominal pain
  • impaired concentration
  • poor short-term memory
  • inability to sustain attention
  • difficulty thinking and expressing thoughts
  • difficulty reading and writing
  • being overwhelmed by schoolwork
  • difficulty making decisions
  • confusion
  • uncharacteristic behavior
  • outbursts and mood swings
  • fevers/chills
  • joint pain
  • dizziness
  • noise and light sensitivity”

Here a few other symptoms in children:

  • Low tone
  • Clumsiness
  • Learning disabilities
  • Vision problems
  • Fear of heights
  • Rages
  • OCD
  • Heartburn
  • Achiness, especially in the knees

Uncharacteristic Behavior

It was the uncharacteristic behavior, outbursts and mood swings that really made me suspect that it might be Lyme.

I did more research on it, especially about Dr. Charles Ray Jones, a Lyme pediatric specialist who practices near my town.  I had heard him speak before at Dietrich Klinghardt’s Klinghardt Academy in New York City a few months prior; Dr. Klinghardt also specializes in difficult-to-treat disorders, like Lyme, autism and autoimmune diseases.

I had brought a friend who suffers from possible Lyme disease with me to the Academy’s workshops, and she knew of Dr. Jones and his amazing work.

Dr. Jones is fairly famous in the Lyme disease community for recovering children from what is thought to be autism, ADHD, SPD, OCD, ODD and other neurodevelopmental disorders.  It turns out that in MANY of these cases, these children actually had Lyme disease. 

Dr. Jones has recovered over 10,000 children from these disorders.  He prescribes various antibiotics for a course of many years, whereas if you were to go to a typical doctor for treatment of Lyme, he or she would prescribe antibiotics for a few weeks or months.

Personally, I wouldn’t want to subject myself or my children to antibiotics for any amount of time these days, knowing what I know about how they destroy the immune system.  But, hey, the man gets results, and the results show that many of these disorders are, in fact, from Lyme infections.

In his presentation, he gave a few examples of children.  One of them was a young boy who at a very young age (5 or 6) had already been in and out of juvenile detention for things like harming animals, which is a known sign of a child or person on the road to becoming a hardened criminal.  After a few months of treatment from Dr. Jones, this same boy had become the sweetest, most likeable child.

Dr. Jones typically suspects Lyme if the child has any of the following conditions:

  • “frequent fevers
  • increased incidence of ear and throat infections
  • increased incidence of pneumonia
  • irritability
  • joint and body pain
  • poor muscle tone
  • gastroesophageal reflux
  • small windpipe (tracheomalacia)
  • cataracts and other eye problems
  • developmental delay
  • learning disabilities
  • psychiatric problems”

What’s interesting is that 50% of Dr. Jones’ patients have no known history of being bitten by a deer tick and fewer than 10% have a history the classic Lyme bull’s-eye rash (erythema migrans).  In fact, many times the mother unknowingly passes the infection on to the child during pregnancy or childbirth.

Lyme Co-Infections

Lyme disease isn’t just infection from the Lyme spirochete bacterium.  There are also co-infections (bartanella, babesia and erlichia) that typically occur at the same time.  Or someone could just get one of the co-infections without having any of the other co-infections of Lyme.

Lyme disease and its co-infections are difficult to test for.  One reason is due to the corkscrew shape of the bacteria, which allows them to burrow in without being easily detected.

Spirochetes (see the word “spiral” in there?) are one of the most ancient forms of life on this Earth, and they know to survive and adapt to rapidly changing environments.

The Great Masquerader

Lyme can masquerade not only as autism and development delays but also as rheumatoid arthritis (RA), fibromyalgia, multiple sclerosis and neurological damage.  In my mind, it should be one of the first things tested for when an autoimmune disease or neurological dysfunction has a sudden onset.  It’s becoming a hidden epidemic, as not a lot of doctors know to test for it.

There’s an excellent documentary about Lyme called, “Under Our Skin”.  I specifically remember a beautiful woman documented in the film who became increasingly contorted.  She gradually lost control of many of her muscles, and doctors, of course, thought she had multiple sclerosis (MS).

The reason that we know it wasn’t MS is that she regained her strength and control after a very long course of antibiotics, so it was obviously an infection.  How many people that have MS, RA, fibromyalgia, autism or developmental delays simply have Lyme?  It’s a real shame they’re not getting proper treatment.

Lyme is not just limited to the Northeastern U.S. anymore; it’s now spreading west to places where you wouldn’t think deer ticks are.  Deer ticks are not the only means of transmission:  mosquitoes, fleas and ticks can also carry the infection.

Given that there is an increasing number of people with gut dysbiosis and toxicity, and thus, a compromised immune system, it’s not surprising that their weakened state allows for such an infection.

Testing for Lyme

Most doctors will run a Western blot test, but it’s not always accurate.  An IgG test would show elevated levels when fighting an infection for a long time, and an IgM test shows if an illness has been reactivated.

Given the confusion surrounding the issue of detecting Lyme, I asked our naturopath to test my son for Lyme with his ASYRA (yes, it’s a little “woo woo”).  Sure enough, my son was infected with bartonella, also known as cat-scratch fever.

Rather than going the antibiotic route, our naturopath prescribed a super-strong herbal remedy.  Ever since treatment began a couple of months, my son hasn’t been hateful or hurtful and is now the super-sweet boy I remember.  His favorite words now are, “I’m so happy I could cry.”  Me, too!

 

PEANUT ALLERGY

peanutsI remember when I was growing up in the 1970’s (ahem) that no one had allergies, let alone an allergy to peanuts.  Now, if you go to a school, you’ll see “nut-free classrooms” and “nut tables” in the cafeteria.

Visit the school nurse’s office these days, and you’ll see epi pens everywhere along with a binder full of names of children that may require them.

Peanut allergies are no laughing matter.  They can be deadly very quickly, causing sudden anaphylaxis upon exposure to even dust or oil from peanuts.

Peanutallergy.com reports that 1% of the American population has an allergy to peanuts, while 4% of children are allergic to peanuts.  This means that the incidence is rising in the pediatric population.

So what is a parent to do?  One thing is to learn the soft signs of a compromised immune system that Epidemic Answers lists.  Be on the lookout for projectile vomiting, cradle cap, colic, diaper rash, red ears after eating, chronic runny nose, chronic constipation, a distended “pot” belly and more in your baby or toddler.

 

RECOVERY FROM SENSORY PROCESSING DISORDER, REFLUX, ASTHMA, ECZEMA

older sonMy Children: Recovered from Sensory Processing Disorder, Acid Reflux, Asthma and Eczema, and getting healthier everyday!

(NOTE:  This is a blog I wrote for Epidemic Answers, a 501(c)3 non-profit of which I am a Board Member.  We let parents know that recovery is possible from autism, PDD-NOS, ADHD, allergies, asthma, autoimmune diseases and other chronic children’s health disorders.)

I have recovered my sons from sensory processing disorder (SPD), acid reflux,  asthma and eczema.  [Read more…]

THE “R” WORD

recover button

recover button

You may or may not know my personal recovery story.

I have recovered my 2 sons, now ages 6 and 8, from sensory processing disorder (SPD), asthma and acid reflux with a biomedical approach, which means correcting nutritional and hormonal deficiencies, removing toxicities and correcting gut dysbiosis.

I’m still working on failure to thrive, mitochondrial dysfunction and hypothyroidism.  In addition, they both had developmental delays, and my older son had severe hypotonia as a baby.

I have recovered from immune dysregulation, in which I had shingles twice, the worst case of poison-ivy ever, bronchitis (which I’d never had before), constant sinus infections and constant colds that would last 3-4 weeks at a time.  [Read more…]

WHICH PATHOGENS LURK IN YOUR GUT?

CandidaDid you know that gut dysbiosis, which means there are too many pathogens outnumbering probiotic bacteria, is linked to autism, PDD-NOS, ADHD, allergies, asthma, sensory processing disorder, colic, eczema, IBS and autoimmune diseases like lupus, fibromyalgia and rheumatoid arthritis?

If your gut is dysbiotic, you likely have immune dysregulation.

For $99 or less (the more you order, the cheaper it is), you can find out which good guys and bad guys are taking up residence inside of you.

If you’ve ever had any kind of stool analysis done, you’ll know this is a bargain price AND the results are anonymously documented in the Human Microbiome Project.  Read more…

 

Why Is Gut Dysbiosis So Bad for You?

Why Is Gut Dysbiosis So Bad for You?Gut dysbiosis is an imbalance of good vs. bad bacteria, yeast and other pathogens in your intestines. This is important because most of our immune system is located in our gastrointestinal tract, as most pathogens enter our bodies through our mouths.

Gut dysbiosis can cause lowered dopamine and lowered serotonin, as well as an inability to remember something in the short term, because most neurotransmitters are made in the intestines.

It can also cause leaky gut (intestinal permeability) which means that waste products that should be pooped out are not and are instead leaking out and causing an immune response.

Gut dysbiosis also causes nutritional deficiencies and can lower thyroid function, as well as cause lowered excretion of waste through the kidneys.

In addition, it causes increased ghrelin and lowered leptin, making you feel hungrier than you should, thereby contributing to weight gain.

Toxins produced by gut pathogens impairs your liver’s ability to detoxify, and because they are stressors, your adrenal glands will produce more cortisol, leading to fatigue and an inability to handle stress.

Gut dysbiosis causes inflammation and oxidative stress, as well as damage mitochondria, thereby increasing fatigue and lowering glutathione, the body’s powerful antioxidant.

 

BOOK REVIEW: ENVISIONING A BRIGHT FUTURE

If you could buy only ONE book about how to recover your child from autism, PDD-NOS, sensory processing disorder, learning disabilities, developmental delays or ADHD, I would recommend it be my friend Patty Lemer’s, “Envisioning a Bright Future:  Interventions That Work for Children and Adults with Autism Spectrum Disorders.”

Patty is the Executive Director and co-founder of the non-profit Developmental Delay Resources, and she has been working with these kinds of kids for over 40 years.  She’s seen it all; she knows what works.

The way she told me to read the book was to read the last chapter first:  “Prioritizing Therapies for Children with Autism Spectrum Disorders”.  She’s in process of writing another book that expands on this chapter, but I’ll give you the short version of it here:  [Read more…]

KOMBUCHA MAY NOT BE FOR EVERYONE

Kombucha may not be well tolerated by those with weak immune function, gut dysbiosis or hormonal imbalances, such as people with SIBO, IBS or Candida overgrowth.  Donna Gates of the Body Ecology Diet recommends doing controlled ferments with specific bacteria or yeast instead.  Read more…

SOURCE:  Body Ecology

HOW MY HEAVY-METAL POISONING DAMAGED MY SONS

After finding out that I had heavy-metal poisoning, I immediately thought about my sons.  Was it possible that I had passed any of this on to them?

Could this be responsible for their sensory processing disorder (SPD), asthma, allergies, eczema, acid reflux, and developmental delays?

Would I finally find the common thread that I had been looking for all along that tied all of these conditions together?

Yes, unfortunately.

My Sons’ Heavy-Metal Toxicity

After finding out about my toxicity, I had both sons tested with a heavy-metal hair test because it’s not invasive.

My older son was in the 97th percentile for heavy-metal toxicity; my younger at the 90th. [Read more…]

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